The Colonnade is a 10 minute taxi ride, or 4 stops on public transportation, from the Martin Conference Center. The Colonnade, 120 Huntington Avenue, Boston. Or call the Hotel’s Reservations Department directly at +1-80 or +1-61 and refer to the “Usher Syndrome Conference 2014.” Rates: $200 One Bed, $209 Two Beds, $209 Handicap Accessible. Online reservations can be made at select “Check Availability,” “Special code” then use Group Code: USHE0709. The Inn at Longwood Medical is a 5 minute walk from the Martin Conference Center. The Inn at Longwood Medical, 342 Longwood Avenue, Boston.
USHER SYNDROME COALITION CODE
To reserve, use Block Code “USHERSYN” to book online at: or call The Midtown Hotel’s Reservations Department directly at +1-61, or +1-80 and identify the block name: “Usher Syndrome Conference.” Rates: $159 single/double, $169 triple, $179 quad. The Midtown Hotel is a 10 minute taxi ride, or 4 stops on public transportation (the “T”) from the Martin Conference Center. The Midtown Hotel, 220 Huntington Avenue, Boston. Group rates are available at the following hotels: In short, the Coalition for Usher Syndrome Research strives to be the most comprehensive source of information on Usher Syndrome and the tremendous efforts being made to find a cure.ĪBSTRACT SUBMISSION: Click here for guidelines and to submit an abstractĪll Hotel Reservation Deadlines: June 4, 2014 In the United States, member institutions from coast to coast bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. The Coalition counts a number of leading institutions and researchers among its members. Our goal is simple: Provide hope to families with Usher Syndrome.
USHER SYNDROME COALITION TRIAL
While there are currently no universally agreed upon treatments for Usher Syndrome, there are a number of treatments nearing clinical trial that could potentially help people with Usher Syndrome.īased in the United States, the Coalition for Usher Syndrome Research is a 501(c)3 non-profit organization dedicated to helping families cope with Usher Syndrome while working diligently to find a cure. Most individuals with Usher Syndrome are legally blind by the time they are young adults. Initially, they will develop night blindness, followed by a narrowing of the visual field, commonly known as “tunnel vision,” leading eventually to complete blindness. Early in life they will experience symptoms of a progressive vision disorder known as retinitis pigmentosa (RP). Children with Usher Syndrome are born with or develop hearing loss and may also be born with or develop vestibular issues which adversely affect their balance. Approximately 45,000 Americans are affected by this genetic disorder. Usher Syndrome is the leading cause of deaf-blindness in the world.
This unprecedented combination of events is expected to engage the largest number of constituents in the history of the Usher Syndrome community. The annual Usher Syndrome Family Conference will convene on Jbringing together professionals with those affected by Usher Syndrome. The meeting will enable the exchange of ideas and knowledge among different disciplines in order to facilitate new research and progress that focuses on Usher Syndrome.
The International Symposium on Usher Syndrome will convene on July 10-11, 2014 bringing together researchers, clinicians, geneticists and specialists to examine the latest research and developments in Usher Syndrome. Martin Conference Center at Harvard Medical School. The Coalition for Usher Syndrome Research presents the Third International Symposium on Usher Syndrome in conjunction with the Sixth Annual Usher Syndrome Family Conference in Boston, Massachusetts at the Joseph B.
International Symposium on Usher Syndrome | History in the Making International Symposium on Usher Syndrome: July 10-11, 2014Ħth Annual Usher Syndrome Family Conference: July 12, 2014
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